Category: Useful Links – Medical


Leukemia Research Trials.

By Super User,

Total Therapy for Infants With Acute Lymphoblastic Leukemia (ALL) Description – This is a phase I/II trial which studies the side effects and best dose of vorinostat and to see how well it works when given together with bortezomib and combination chemotherapy in treating infants with newly diagnosed acute lymphoblastic leukemia. Bortezomib and vorinostat may  … Read more

Leukemia Specialists.

By Super User,

Dr. Peter G. Steinherz, MD Dr. Steinherz is a Pediatric Hematologic Oncologist and Director of the Leukemia and Lymphoma Studies at Memorial Sloan-Kettering Cancer Center. He was among the founders of Camp Simcha. During his 30-year tenure at MSKCC, Dr. Steinherz and his colleagues have developed new treatment protocols that have improved the survival rates  … Read more

A potential new target for treatment of diffuse intrinsic pontine glioma (DIPG).

By Super User,

There are some childhood cancers that have experienced few treatment advances in the past decades. The lack of effective treatment options can be a nightmare for patients and their families. The slow pace of translation for promising research from the laboratory to the clinic has created a “pre-clinical gap” meaning that basic scientific research is  … Read more

Genome sequencing of cancer survivors.

By Super User,

St. Jude Children’s Research Hospital completed the first whole-genome sequencing of cancer survivors and the conclusions where that 12% of childhood cancer survivors carry germline mutations that put them at increased risk of developing cancer later in life. Researchers recommended expanding genetic screening and counseling to: Childhood cancer survivors who have been diagnosed with second cancers  … Read more

Neuroendocrine Tumors.

By Super User,

Name: Neuroendocrine tumors. Childhood Cancer Name: Neuroendocrine tumors, carcinoid tumors, NET. Main types: Appendiceal NETs or Appendix carcinoids (a pouch that sticks out from the first part of the large intestine near the end of the small intestine) his is the most common neuroendocrine tumor in children. Lung NETs or Bronchial carcinoids Small bowel NETs Large bowel  … Read more

Raining in my heart.

By Super User,

Raining in my heart is a documentary released the last November of 2017 by real stories, of three children who enrolled in cancer research clinical trials in Britain. With all the conventional treatment exhausted, these kids are offered to try immunotherapy. Sophie Ryan-Palmar (12 years old), whose cancer came back four times, Fabian Bates (11  … Read more

Personalized medicine for brain tumors.

By Super User,

The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is a network of more than 20 children’s hospitals that conduct clinical trials of new therapies for children with brain tumors with the mission to identify personalized treatment challenges. PNOC was formed to provide children with brain tumors access to individual and personalized treatment based on the molecular biology  … Read more

More about Neuroendocrine Tumors…

By Super User,

Many patients diagnosed with a neuroendocrine tumor claimed that this video helped them to learn and understand deeply about their condition. For this reason, we want to share with you this lecture about Neuroendocrine Tumors (NETs) from the Royal Free London NHS Foundation Trust given by Dr. Christos Toumpanakis and Jorge Garcia-Hernandez. Eventhoug is not specifically  … Read more

About Experimental Therapies.

By Super User,

In this video, researchers from the Children’s Hospital of Philadelphia talk about experimental therapy for pediatric cancer and why it is important to consider these types of therapies at an early stage of the treatment. If your kid was diagnosed with a rare or aggressive type of cancer it is important to consider more than  … Read more

Understanding Retinoblastoma (Video).

By Super User,

In this video, she gives a brief review (3:34 minutes) of Retinoblastoma from diagnosis to treatment in a very clear and general way. We recommend you to watch this video for a general understanding of the disease. Some parents, while going through the process like to review the information to increase their knowledge and understand again some details,  … Read more