There are some childhood cancers that have experienced few treatment advances in the past decades. The lack of effective treatment options can be a nightmare for patients and their families. The slow pace of translation for promising research from the laboratory to the clinic has created a “pre-clinical gap” meaning that basic scientific research is … Read more
Category: Useful Links – Blogs
In this video, researchers from the Children’s Hospital of Philadelphia talk about experimental therapy for pediatric cancer and why it is important to consider these types of therapies at an early stage of the treatment. If your kid was diagnosed with a rare or aggressive type of cancer it is important to consider more than … Read more
Pfizer Oncology announced the launch of its free mobile application, called LivingWith, for patients to help manage their lives with cancer, a program that provides tools and resources to support those who have been affected by cancer. The app allows patients to connect with family and friends; send requests to people asking for help with daily tasks; … Read more
Having your child sick is a very scary thing, in this Video Smara and her family shares a very deep story about their journey after being diagnosed with Rhabdomyosarcoma. It started with a bump on her leg that her mom detected during a bath, she underwent to 47 weeks of chemotherapy and an amputation. For … Read more
Join the Pediatric Oncology Survivors POS was founded in September of 2000 by a parent of a survivor of an adolescent cancer and a long term survivor of an adolescent cancer. POS is intended for parents/family members of survivors who are off treatment for any type of childhood cancer. In POS, we discuss all aspects … Read more
Focus On Rhabdo A newly-formed community (2014) comprised of parents, researchers and doctors, focused on trying to get grants and push forward rhabdo-specific research
Caring Bridge Online space where you can connect, share news, and receive support.
Rare Cancer Alliance (RCA) A community for rare types of cancer. This forum is very well organized and its community has a respected number of members. Note: this forum is not focused on children’s cancer.