Pfizer Oncology announced the launch of its free app, called LivingWith, for patients to help manage their lives with cancer, a program that provides tools and resources to support those who have been affected by cancer, The app allows patients to connect with family and friends; send requests to people asking for help with daily tasks; track … Read more
Category: Useful Links – Blogs
Having your child sick is a very scary thing, in this Video Smara and her family shares a very deep story about their journey after being diagnosed with Rhabdomyosarcoma. It started with a bump on her leg that her mom detected during a bath, she underwent to 47 weeks of chemotherapy and an amputation. For … Read more
Join the Pediatric Oncology Survivors POS was founded in September of 2000 by a parent of a survivor of an adolescent cancer and a long term survivor of an adolescent cancer. POS is intended for parents/family members of survivors who are off treatment for any type of childhood cancer. In POS, we discuss all aspects … Read more
Focus On Rhabdo A newly-formed community (2014) comprised of parents, researchers and doctors, focused on trying to get grants and push forward rhabdo-specific research
Caring Bridge Online space where you can connect, share news, and receive support.
Rare Cancer Alliance (RCA) A community for rare types of cancer. This forum is very well organized and its community has a respected number of members. Note: this forum is not focused on children’s cancer.