The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is a network of more than 20 children’s hospitals that conduct clinical trials of new therapies for children with brain tumors with the mission to identify personalized treatment challenges. PNOC was formed to provide children with brain tumors access to individual and personalized treatment based on the molecular biology … Read more
Category: Useful Links – Assosiations
Cord Blood Banking (www.cordbloodbanking.com) is an awareness advocacy group. From their website: “We are a charitable donor supporting the American Cancer Society and the American Childhood Cancer Organization (ACCO). Umbilical cord blood has helped children survive over 80 diseases including leukemia, lymphoma, and anemia and is now being used in older patients. Our mission is … Read more
American Brain Tumor Association for information Phone Number: (800) 886-2282. Their website ishttp://www.abta.org/ They can send a packet of pamphlets like “Dictionary for Brain Tumor Patients”, “Coping with Brain Tumor”, “A Primer of Brain Tumors – A Patient’s Reference Manual” and “About Secondary (Metastatic) Brain Tumors”, and more. Contact them now to get the … Read more
Here are a few financial assistance links, in the U.S: HealthWell Foundation is an independent, charitable organization that assists financially needy individuals in obtaining prescription medications. The Foundation provides financial assistance to eligible individuals to pay insurance premiums or copayments. www.healthwellfoundation.org — The Chronic Disease Fund is one of the few charitable organizations to provide direct and immediate … Read more
The Childrenâ€™s Brain Tumor Foundation is a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. Website: www.cbtf.org
ACOR – Association of Cancer Online Resources ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders. ACOR online communities are for parents, caregivers, family members, and friends to discuss clinical and … Read more
Jeremey’s Circle – For children living with cancer in the family (assisting siblings and children of cancer patients)
Israel Cancer Association
American Cancer Society (ACS) Eventhough this society is not focused on children’s cancer, you may still find many useful links.
American Childhood Cancer Organization (ACCO) â€“ Here you can find lots of information about pediatric cancers and treatments. For almost each type of cancer you can also find links to additional web-sites, communities, publications and even books about the disease.