Category: Useful Links – Assosiations

Childhood Cancer in a nutshell.

By Joyce Vazq, is an excellent source of information. They have a youtube channel that provides oncologist-approved information to help patients and families. Dr. Michael Link, specialized in pediatric hematology-oncology explains to us what is childhood cancer in a nutshell.     Progress in the treatment of childhood cancer is one of the great success stories  … Read more

Personalized medicine for brain tumors.

By Joyce Vazq,

The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is a network of more than 20 children’s hospitals that conduct clinical trials of new therapies for children with brain tumors with the mission to identify personalized treatment challenges. PNOC was formed to provide children with brain tumors access to individual and personalized treatment based on the molecular biology  … Read more

Cord Blood Banking

By Oded,

Cord Blood Banking ( is an awareness advocacy group. From their website: “We are a charitable donor supporting the American Cancer Society and the American Childhood Cancer Organization (ACCO). Umbilical cord blood has helped children survive over 80 diseases including leukemia, lymphoma, and anemia and is now being used in older patients. Our mission is  … Read more

American Brain Tumor Association

By Shadmit,

American Brain Tumor Association for information Phone Number: (800) 886-2282.   Their website is  They can send a packet of pamphlets like “Dictionary for Brain Tumor Patients”, “Coping with Brain Tumor”, “A Primer of Brain Tumors – A Patient’s Reference Manual” and “About Secondary (Metastatic) Brain Tumors”, and more.  Contact them now to get the  … Read more

Financial support (medications & lodging)

By Super User,

Here are a few financial assistance links, in the U.S:   HealthWell Foundation is an independent, charitable organization that assists financially needy individuals in obtaining prescription medications. The Foundation provides financial assistance to eligible individuals to pay insurance premiums or copayments.   — The Chronic Disease Fund is one of the few charitable organizations to provide direct and immediate  … Read more

Children’s Brain Tumor Foundation

By Super User,

The Children’s Brain Tumor Foundation is a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. Website:

Association of Cancer Online Resources (ACOR)

By Super User,

ACOR – Association of Cancer Online Resources ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders. ACOR online communities are for parents, caregivers, family members, and friends to discuss clinical and  … Read more

Jeremey’s Circle

By Super User,

Jeremey’s Circle – For children living with cancer in the family (assisting siblings and children of cancer patients)

American Cancer Society (ACS)

By Super User,

American Cancer Society (ACS) Eventhough this society is not focused on children’s cancer, you may still find many useful links.