Natalie’s Story.

“Everyday brings a chance for you to draw in a breath, kick off your shoes and Dance”, said Oprah Winfrey. For the little dancer in Natalie Gorsegner, this quote describes her battle with cancer all too well. At two and half years old, Natalie was diagnosed with acute lymphoblastic leukemia (ALL).

Here is Natalie:

 

The magazine Parents shared a special video called “What is really like to have a child with cancer”  where Natalie´s mom narrated their heart touching story. Reminding us how important is to keep a positive and peaceful attitude in order to help our children to cope better with the situation. When a kid is diagnosed with cancer it affects all the family, it is very important to stay together and to look for the bright side. Stories from other families are here to let you know you are not alone.

“I waited for the test results and then like a scene out of a movie, I saw a small team of people approaching, one with tears in her eyes. An oncologist told me the news. Your daughter has leukemia”, said Andrea Verdone Gorsegner, Natalie’s Mother.

Living through cancer can be quite an ugly, intense experience and along came Natalie’s difficult moments too, like having the port in her chest, her tubie and also her belly protruding to a point which made her uncomfortable wearing shirts. “Whenever Natalie is struggling later in life, I want her to look back and remember her experiences so she can get through anything”, said Andrea.

It is difficult for a 3 year old child like Natalie to understand the severity of the disease but soon she also took up the treatment to be a part of her daily routine. Cancer made Natalie a superhero for so many of us as she learnt to take things in her stride.

“ Having a child with cancer just changes you forever. You look at the simple moments and appreciate them more. I want all children, including Natalie, to be able to climb trees until they can climb them with their own kids”, said Natalie’s mother Andrea.

Do you feel identify with some of these feelings or thoughts?

Natalie is cancer free now, and the family is still committed to raising money to fund cancer research:

 

We recommend you to look out for support groups and other parents with experience, they can help you manage difficult situations, my child´s cancer is here to support you, please do not hesitate to contact us.   

To read more about it click here.  

 

 

Raining in my heart.

Raining in my heart is a documentary released the last November of 2017 by real stories, of three children who enrolled in cancer research clinical trials in Britain. With all the conventional treatment exhausted, these kids are offered to try immunotherapy. Sophie Ryan-Palmar (12 years old), whose cancer came back four times, Fabian Bates (11 years old) diagnosed with Leukemia and Chloe (3 years old) who’s Neuroblastoma has spread throughout her body.

This documentary follows these children and their families for 2 years, giving them space to talk about their feelings and emotions as well as the decision-making process during this battle.

This documentary honors these heroic children who are helping discover new cancer treatments and helps by raising awareness on this subject and offering hope to other cancer patients.

You can watch the full documentary here:

 

Chloe’s parents created a diary and they are sharing a lot of their battle on her Facebook page, to read more about her story click here.  

 

To learn more about clinical trials or if you have any question do not hesitate to contact us, we are here to help you.

 

 

Cord Blood Banking

Cord Blood Banking (www.cordbloodbanking.com) is an awareness advocacy group.

From their website:

“We are a charitable donor supporting the American Cancer Society and the American Childhood Cancer Organization (ACCO). Umbilical cord blood has helped children survive over 80 diseases including leukemia, lymphoma, and anemia and is now being used in older patients. Our mission is to help others understand how they can benefit and help save the lives of sick children in need.

Our team at cordbloodbanking.com provides the latest up-to-date information and free resources for expecting parents.

There have been over 35,000 cord blood transplants thanks to donors worldwide. With more awareness we can increase this number and further save the lives of children suffering from leukemia, lymphoma and other cancerous diseases.

For more information please visit our website.”

Leukemia (ALL) (AML) (JMML) (APL) (CLL) (CML)

Cancer Localisation: Blood
Treatment: Chemotherapy

IN A NUTSHELL

Leukemia is the most common type of pediatric cancer covering about one third of pediatric cancer.

There are two main types of Leukemia:

  1. Acute Lymphoblastic Leukemia (ALL)
  2. Acute Myeloid Leukemia (AML)

Here is the statistical breakdown of the different leukemia types:

Full NameType (abbr)% of total Leukemias
Acute Lymphoblastic LeukemiaALL~75%
Acute Myeloid LeukemiaAML~20%
Juvenile Myelomonocytic leukemiaJMMLRare
Acute Promyelocytic leukemiaAPLRare
Chronic Lymphoblastic LeukemiaCLLRare
Chronic Myeloid LeukemiaCMLRare

For general information check oalso these websites:

The American Childhood Cancer Organization (ACCO) / Leukemia
The National Cancer Institute (NCI) / Leukemia

 

PARENTS WHO HAVE BEEN THERE WOULD ALSO TELL YOU;

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This page is under construction.

If you would like to provide relevant information or recomendations for this page please contact us via info@MyChildsCancer.org.

See also the interviews on our Testimonials page.