Here is a link to a list of recommended medical centers around the world, a part of the Liddy Shriver Sarcoma innitiative.The Initiative increased public awareness of sarcoma, raised funds to award research grants, and provided support and timely information to sarcoma patients, their families, and medical professionals.
Alveolar soft part sarcoma (ASPS) is a rare malignancy that tends to strike young adults and adolescents. It has an unusual clinical behavior; it is somewhat indolent, with slow progression, and yet is incurable once metastasized. Patients with ASPS often present with extensive metastatic disease, frequently involving the lungs and sometimes the brain.
Massachusetts General Hospital‘s canccer center (Boston, U.S) is one of the leading cancer centers in the U.S, and is one of only a few hospitals on the east coast which offers Proton-therapy for children: http://www.protonsforkids.org/
Learning about your child’s disease is important for a couple of reasons: You want to be able to have a meaningful conversation with your doctor and to be able to ask the right questions. Even the best doctor can not know all the new things that are happenning around the world in regards to your […]
One of the most important things a parent can do is to be active since in many cases the flow of information between different doctors from different departments or even hospitals is not so good. A pro-active parent makes sure all the doctors communicate and also documents what each doctor is saying, making sure when […]
Gali has been battling MedulloBlastoma for the past 4 years. Diagnosed at the age of 2.5 with stage 3 MedulloBlastoma, Gali’s parents faced different opinions and had to make tough choices in order to provide her the best treatment. Eventually they have traveled from Israel to L.A and from there to NYC, balancing between the recommendations of […]
Daniela Tendler, 24, shares her 5+ years journey fighting cancer. Diagnosed with ChondroSarcoma – a very rare type of cancer, Daniela has overcome 3 relapses and now battling relapse #4, going through treatments which are not part of the familiar protocol. Watch this video to learn more about the latest and greatest in ChondroSarcoma treatment.If […]
This testimonial is about a Neuroblastoma first diagnosed at the age of 9 months old. Today this boy is 4.5 years old and fought successfully 2 relapses.This is an amazing testimonial from the relapse master, Muli’s mom. In this interview, MyChildCancer’s founder, Oded Grinstein, is interviewing Myriam Safrai from Israel about the treatment and challenges […]
In case you have identified the best doctor in the world for your child, try to get yourself into his/her patient’s system by getting their second opinions at an early stage. In case you will need such a connection in the future, processes will be MUCH faster and easier when you already have a patient […]
This is the story of Shani (9 months old) who was diagnosed with RMS. Her parents relocated from Israel to NYC to provide her the best treatment available, and they claim that by doing so they have saved her life. *** WHEN RELOCATION SAVES A LIFE Shani is the daughter of the founder of MyChildCancer. […]
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