Category: Parent tips


Brain tumors: Consult Dr. Fineley from LACH

By Super User,

parents tips about childhood cancer

Dr. Jonathan Finlay from Children’s Hospital of Los Angeles is an expert and a thought leader in brain tumors in children which can not / should not be treated with radiation therapy. From CHLA’s website: Expert in treatment of children, adolescents and young adults with brain tumors, especially young children with treatment strategies that avoid  … Read more

ChondroSarcoma: Keep looking outside the conventional treatment

By Super User,

parents tips about childhood cancer

The main treatment for ChondroSarcoma is by surgery. That being said, there is a growing number of patients who have gotten good results with alternative treatment strategies, such as Protontheraphy and even chemotherapy. Contact MyChild’sCancer in order to get introduced to patients who have been there and done that.

Vomiting in the morning

By Super User,

parents tips about childhood cancer

Vomiting in the morning is an early sign for a possible brain tumor.

Know everything you can about your child’s disease

By Super User,

parents tips about childhood cancer

Learning about your child’s disease is important for a couple of reasons: You want to be able to have a meaningful conversation with your doctor and to be able to ask the right questions. Even the best doctor can not know all the new things that are happenning around the world in regards to your  … Read more

Parents need to be facilitators and coordinators of the treatment

By Super User,

One of the most important things a parent can do is to be active since in many cases the flow of information between different doctors from different departments or even hospitals is not so good. A pro-active parent makes sure all the doctors communicate and also documents what each doctor is saying, making sure when  … Read more

Radiation in infants (Israel)

By Super User,

parents tips about childhood cancer

Three (3) years is the minimum age for radiation treatment in Israel. This means that there is very little experience in radiation children under this age even if a decision was made to radiate before that age. If you live in Israel or any other country with a similar protocol and your child’s cancer requires  … Read more

Get yourself into doctors’ systems

By Super User,

parents tips about childhood cancer

In case you have identified the best doctor in the world for your child, try to get yourself into his/her patient’s system by getting their second opinions at an early stage. In case you will need such a connection in the future, processes will be MUCH faster and easier when you already have a patient  … Read more

NeuroBlastoma: prepare your child for an MIBG therapy

By Super User,

parents tips about childhood cancer

The child is radioactive after the infusion so you cannot be with him for about one week. If you have a little child that doesn’t know how to keep himself busy (playing by himself or using an iPad for example) and you are about to do an MIBG therapy, teach him how to do so.  … Read more

Retinoblastoma: New treatment in MSKCC

By Super User,

parents tips about childhood cancer

There is a new treatment developed in Japan (available also in MSKCC in New York) which includes a direct chemo injection into the eyeball. This procedure, which is complicated to execute in little babies, improves the effect on the cancer cells while decrease the Intra-arterial chemotherapy’s side effects.

Hepatoblastoma: Get the best surgeon!

By Super User,

In HepatoBlastoma, when not metastasize, a good surgeon is a key factor for a full recovery. The liver is the only internal organ in the body that can rebuild itself completely. Therefore in case the tumor in the liver has ample ‘clean borders’ (i.e. cancer-free tissues) around it, in most cases it will be possible  … Read more