Category: Parent tips

Some inspiration.

By Joyce Vazq,

Sam a child diagnosed with Diffuse Intrinsic Pontine Glioma, he was not eligible for clinical trials because he was only 2 years old. Sam lost the battle against cancer, but his mom, Erin Benson, never gave up to make him happy. Inspired by the support of friends and family she founded With Purpose a youth-led  … Read more

Personalized medicine for brain tumors.

By Joyce Vazq,

The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is a network of more than 20 children’s hospitals that conduct clinical trials of new therapies for children with brain tumors with the mission to identify personalized treatment challenges. PNOC was formed to provide children with brain tumors access to individual and personalized treatment based on the molecular biology  … Read more

What about music therapy?

By Joyce Vazq,

Part of an integrative oncological treatment is to take care of all aspect of our children; music is a powerful expression tool that reduces anxiety, depression, and pain, it can also help the children to cope better with hospitalizations. In Music therapy, the intention is to promote health by using music experiences including instrument play,  … Read more

More about Neuroendocrine Tumors…

By Joyce Vazq,

Many patients diagnosed with a neuroendocrine tumor claimed that this video helped them to learn and understand deeply about their condition. For this reason, we want to share with you this lecture about Neuroendocrine Tumors (NETs) from the Royal Free London NHS Foundation Trust given by Dr. Christos Toumpanakis and Jorge Garcia-Hernandez. Eventhoug is not specifically  … Read more

Cancer advice from parents of children with Retinoblastoma.

By Joyce Vazq,

  For the first ophthalmology referral if you have any unusual photos of your child’s eye/s, take these with you. Since the treatment includes many interventions, it is crucial to find a specialized clinic with a formed clinical team including pediatric oncologists, ocular oncologists, pediatric ophthalmologists, surgeons, radiation treatment specialists, rehabilitation specialists and genetic counselors. After  … Read more

Sperm Banking for Adolescents With Cancer

By Joyce Vazq,

As treatments for childhood cancers have improved, more and more survivors are entering their reproductive years, and are thinking about starting families of their own. The possibility of losing the ability to have children due to cancer treatment is very concerning to many families. Fertility is an extremely important quality of life concern for childhood  … Read more

Detect Eye Cancer (Retinoblastoma) with Your Smart Phone.

By Joyce Vazq,

Retinoblastoma is curable when diagnosed early and treated appropriately, this post is dedicated to inspiration and awareness, often affected families who underwent though this road get a call to action to help other families and make their path easier by sharing or creating tools and information to friends, teachers, medical students, who can help with  … Read more

Natural Nausea Solution for kids

By Oded,

Your child is suffering from Nausea? We know that in order to prevent or decrease Nausea, a doctor may prescribe anti-nausea meds (such as Zofran, Ondansatron, Emmend etc.) which you should give a couple of days BEFORE a chemotherapy treatment cycle. However, nausea can come and go also long after chemo has ended and if  … Read more

Post Treatment Headaches and migraines

By Oded,

Headaches and migraines are a known post treatment phenomena which some doctors associate with the treatment and some don’t. It could be a result from the chemo and other parts of the treatment or a combination of other biological processes (such as puberty, hormones, eyesight etc.). It is recommended to consult with a pediatric neurologist  … Read more

When you get “There is nothing we can do”

By Super User,

When your doctor/s tell you there is nothing else they can do for your child, it doesn’t necessarily mean there is nothing that can be done. All it means that conventional medicine hasn’t identified the cure. Proactive parents and patients have proven time after time that they can find a way and fight cancer and  … Read more