Cancer Localisation: Nervous System, Other
Diagnostic method: Biopsy analysis, Blood test
Treatment: Chemotherapy, Complementary medicine (ex: Maitake), Radiation, Surgery
NeuroBlastoma in a nutshel
NeuroBlastoma is currently not a desiease that is curable, rather manageble.
In babys under 1.5 years old, it is almost like a different disease as in older kids. The survival rate is significantly highe and the treatment is very different.
Parents who have been there would also tell you these things you should know;
- Babies before the age of 1.5 years old have a very good prognosys. Some parents would argue it is a totally different disease if treated before or after this age.
- Harvest as much bone marrow as possible at the begining of the treatment when you still can. You may need it later on, if/when the cancer will relapse.
- With NB you should always prepare for the next step as relapses occure without a warning and then there is no time to make plans. You always need to have a plan in place for a relapse situation.
- NB tends to relapse. However even when it doesn’t, you should always stay updated about available treatments as trials open all the time for children with and/or without signs of disease. Some parents will take advantage of the ‘quiet’ time after treatment to go for a preventiveÂ clinical trial.
- Memorial Sloan Kettering Cancer Center in NYC is offering an advanced experimental treatment with antibody agents (3F8 Monoclonal Antibody Therapy). Check with your local doctor if such treatment is also available at your local facility.